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Stem Cell Transplant

Hi, I'm Robert

My husband is ready for a stem cell transplant. Any advice for him from those that have had it?

  • Post #1
  • Mon Jan 4, 2021
Hi, I'm SUSAN M G.

What are they doing before the stem cell transplant? My daughter (brain cancer) had this done 20 years ago…so info may be very old. She had massive amounts of chemo, followed by stem cell transplant.

  • Post #2
  • Tue Jan 5, 2021
Hi, I'm Robert

He has had 5 rounds of chemo. Now waiting for additional testing, etc. before a date is set.

  • Post #3
  • Wed Jan 6, 2021
Hi, I'm ANTHONY R G.

Allogeneic or autologous stem cell transplant? I had an allogeneic transplant two years ago and would be happy to share my experience with him. Faith, family, and friends. Be strong!

  • Post #4
  • Fri Jan 8, 2021
Hi, I'm Deborah G.

I had my Autologous cell transplant for Multiple Myeloma in September and now I’m in the engraftment and recovery stage. Just take one day at a time, and do what the Doctors and nurses tell you.

  • Post #5
  • Mon Jan 11, 2021
Hi, I'm Margaret

where did you go to have this done. ?my son is looking into having this done he had a aoreta tear and lost the use of his left leg. he has sever nerve pain. he can stand but still can not walk…any info would be appreciated. thank you.

  • Post #6
  • Mon Jan 11, 2021
Hi, I'm ROBERT A B.

My husband had stem cell transplant at the Mayo in July, I can’t stress enough about drinking water. Start now. He has multiple myeloma, is doing well.

  • Post #7
  • Mon Jan 11, 2021
Hi, I'm Robert

He is having the autologous transplant.

  • Post #8
  • Mon Jan 11, 2021
Hi, I'm Deborah G.

My Stem cell transplant was done at Roper Hospital in Charleston SC.
Only about 10 miles from my home.

  • Post #9
  • Tue Jan 12, 2021
Hi, I'm ANTHONY R G.

My allogeneic transplant was performed at the Cleveland Clinic (CCF). CCF has a library of information and provide a comprehensive transplant notebook to their patients. Big points:

- Find a place to stay (patient and caregiver). I was in the transplant ward for 23 days and had to remain within 1 hour of the hospital for 100 days post-transplant.

- Don’t Dr. Google for information. Go to knowledgeable and reliable sites (e.g., Mayo Clinic, Cleveland Clinic, Cancer Societies).

- The most challenging aspects of the transplant were nausea control, mouth sores (your WBC goes to zero and the bacteria go wild – I didn’t eat for seven days and needed a morphine drip), an unknown infection that gave me a fever and nausea that resulted in an ER visit and re-admittance to the BMT Ward, and GI issues that required an endoscopy and colonoscopy.

- Get out of bed and keep moving.

- I developed a skin rash on my back and chest that was diagnosed as acute graft vs. host disease, but cleared up with steroid cream after approximately three weeks.

- Nine months after my transplant, I developed chronic graft vs. host disease (cGvHD) where my new stem cells were attacking my liver, lips, and salivary glands. Lots of Prednisone for over a year with over a dozen manageable side affects. Unfortunately, tapering off of the Prednisone resulted in a return of the cGvHD, so I will be starting a new drug, Ibrutinib.

- Be VERY careful to prevent infections. There are restrictions on diet and Mother Nature can hammer you (lots of bacteria, fungi, and organisms in the soil). I was doing great, but didn’t wear an N95 mask leveling and re-seeding a section of my backyard and ended up with pneumonia and a Nocardia infection. Five days in the hospital and 12 months of large doses of antibiotics were the result of letting my guard down.

- Your caregiver is your best asset. Find someone you trust. Their love and supervision will get you through. My wife’s job was way harder than my challenges and I wouldn’t be here without her love and care.

Good luck and God bless to all. You can beat cancer!

  • Post #10
  • Tue Jan 12, 2021

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